- Disability
- Health
Cystic Fibrosis Guernsey
Our aims and objectives
Cystic fibrosis is one of the UK’s most common life-threatening inherited genetic conditions affecting more than 10,800 people across the UK and Channel Islands. You are born with CF and cannot catch it later in life. One in 25 of us carry the faulty gene, usually without knowing it.
The gene affected by CF controls the movement of salt and water in and out of cells. People with CF experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body.
Our initial focus is bringing the Channel Island CF community together. Other aims include;
1.Providing a medium through which the Channel Islands CF community can interact, support, identify and discuss CF needs within the Islands and focus attention on them.
2.To work closely with other local charities to find common ground to raise funds for medical or other equipment.
3.Support the wider CF community by raising funds for medical research.
Organisation and management
3 Trustees, all volunteers
Contact information
- Key contact
- Glen Tonks
- Phone Number
- 07911756674
- Email address
- tonksglen@gmail.com
- Website
- cysticfibrosis.org.gg
- Address
- Les Buttieres, Sous la Lande, Cobo, Castel GY57HH
- Registered Number
- CH531*